 Posted 06/03/2012 11:11:16
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I have Osteoporosis with a t score of -3.7. I did take Bisphosponates for 5 years and that gave me Gastritis. I have been asked to have Denosumab now. I am wondering if any one has taken this and would like to share their experiences with me?
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Posted 10/03/2012 00:44:55
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| How about having a look at the patient information sheet that comes with this drug and can be found on line.
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Posted 11/03/2012 09:19:35
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| I have just had my third denosumab prolia injection without any side effects, the first one i had groin pain for a few months after it but luckily havent suffered any since. I do get indigestion but I think that is more to do with the adcal calcium vit D. I too suffered horrible side effects with the other drugs (aldronic acid etc) so this injection twice a year fits into my lifestyle very well and I will continue as long as I don't suffer any serious side effects. Reading the list of these in the packet is scarey but I think they have to cover everything, I needed something and every drug causes some form or other I'm sure and at the moment denosumab is suiting me. I will be interested in my bone density scan in 2014 though to see what improvements there hopefully is.
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Posted 03/05/2012 17:07:27
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| Hi Davyroy, I also have just been perscibed Denosumab. I'm to have the injection at the end of this month. I will be interested to see how I fair on this drug. I was taking Alendronic Acid for the last twelve months, but it made me quite ill. I'm told Denosumab can cause symptoms such as cellulitis and a condition called osteonecrosis of the jaw. I do find that most alternative drugs all appear to have side effects, and the trick is to find one that suits your body. Hope all goes well for you. regards, Telann.
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Posted 16/06/2012 10:54:47
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| My GP is very keen for me to have Denusomab - he has no other patients on it and I think he wants to "see what it will do". My concerns are about the side effects. I have osteoarthritis which causes joint pain, particularly in my knees, hips and ankles, and I certainly don't want to make this any worse.I struggle with Adcal - I have bad reflux and this causes indigestion as well. Do I need to continue with the Adcal if I have the Denusomab? I read on an American website that the side effects can also make reflux much worse. I would be grateful for any user's experiences of this drug, so that I can make an informed choice about this.
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Posted 16/06/2012 18:17:02
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i think this is the drug that i have been recommended. but i have refused as osteonecrosis of the jaw(onj) can be a side effect (basically that is rotting of the jaw bone) if you have invasive dental surgery. and as i am on anti epileptic drugs (aed's) and one of the side effects of aed's is weakened gums leading to tooth loss i do not want to risk onj.
sarahw
Tscore Lumbar spine -3.3, Femoral neck -2.6, Hip -2.2
Alkali diet (+ no caffeine/sugar/salt/rhubarb/spinach) and exercise and supplements of Vit D (2,000IUs daily), Vit K2 as MK7, vit K2 Menatetrenone, Cod liver oil.
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