 Posted 23/11/2011 21:44:27
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| Hello! I'm somewhat concerned by the mixed press of Forsteo and trying to get my head around a great deal of new info. Up till now, my main meds (for rare myositis which limits my exercise): prednisolone (steroid) & immune suppressants (azathioprine) and Alendronic Acid & Calcichew. Having just broken my hip in an 'ordinary' fall and being 'young', I have been prescribed Forsteo. Concerned now though re risks, especially reading US coverage. I'm used to powerful meds as I am proof of their benefits! But if bones renew themselves. . .??? And my T score was ostopeanic/osteoporotic? Is there another way?
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Posted 24/11/2011 08:38:58
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Hi Helen! Ouch!! Like you, I take other big meds for autoimmune diseases. Probably because these include IBD, I was unable to tolerate oral meds, so am due to commence annual infusion shortly (Aclasta). There is also much to be done with diet and exercise, as many on here have proved. Do not despair! 
diagnosed OP at 40, menopause at 42. Intolerant of AA and SR. Got along on Adcal D3, diet and exercise for last ten years. OP worsening. Fractured knee, fibula and shoulder this year. About to commence annual infusion.......
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Posted 24/11/2011 10:18:32
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what kind of Myositis do you have? I have DM..xxx
Jilly
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Posted 24/11/2011 13:34:38
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Jilly, I have DM too with scleraderma overlap. Sorry to hear you do but reassuring to know someone! I'm in SW of Eng. What's been your experience of OP meds combined with your DM meds (currently maintenance dose of 5mg pred + 100g azathioprine + rest of usual?
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Posted 26/11/2011 16:03:51
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I am not on any meds for the DM, was on Hydroxoclorquine, then Methotrexate, but now I seem to manage the symptoms. I just flare up and feel unwell when under energy saving bulbs, especially shopping malls and large dept stores! I am on Ibandronate for the OP, took myself off (following discussion with GP,) have you been in the myositis support group? they have a forum as well, which I occasionally write on it is myositis.org.uk . Take care, and keep going!!!! sometimes my muscles just ache, don't know if it is the side effects of the Ibandronate, or the DM!! such fun!!!!
Jilly
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