 Posted 05/09/2011 17:36:57
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Hello everyone, Has anyone taken Prolia denosumab? I was at the Dr's. today, and after not being able to take anything else up to now,has said maybe I could try that. I'm a bit reluctant because of the way the other drugs made me feel. My biggest concern is that its only every 6 months.So if you have adverse effects, you've got to wait a long time before you feel better!!
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Posted 12/09/2011 21:12:31
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| I had my first prolia injection in February with an instant pain in my groin which wore off gradually over the next few months(have been told there were no other reports of this side effect though so perhaps I was just unlucky) also a little indigestion which could have been caused by the calcium aswell not sure.Had my second one in August and this time had no side effects and feel fine, I suffered so much from side effects from aldronic acid that an injection every 6 months is ideal but I do worry about the long term effects on my body as I'm only 51 and hopefully have many years to come, but am happy with it at the moment as i have a very busy life and its one thing less to think about not having to take any drugs each day or even weekly.
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Posted 27/09/2011 14:29:12
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Hello there
I have asked my GP to prescribe Denusomab - he has done so but only after writing to a local arthritis (!) consultant who seems to think this is a bisphosphonate and I should continue with the high dose Adcal D - which gives me terrible indigestion.I am confused - is this a bisphosphonate or not? I understood it was a completely different type of drug which worked differently. My GP has agreed to prescribe the first dose although he admits he knows nothing about this drug and little about OP........he is querying the cost and says he will have to discuss with the other partners in the practice before he prescribes any more.
Can anyone help?
Jean
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Posted 29/09/2011 18:04:47
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| Jean give the helpline nurses a ring and they will tell you what the medications are.
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Posted 29/09/2011 20:08:41
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Denusomab is not a bisophosphonate, it is a "fully human monoclonal antibody"; basically a form of immunosuppressant. That targets the protein that signals bone removal. Side affects seem to be mainly those of other immunosuppressants e.g. Greater susceptibility to infection. This is according to the drug info. I hope this helps, jeanmjem - I would have little faith in doctors who didn't know this and I agree with Sheila; best to ring the Helpline 
diagnosed OP at 40, menopause at 42. Intolerant of AA and SR. Got along on Adcal D3, diet and exercise for last ten years. OP worsening. Fractured knee, fibula and shoulder this year. About to commence annual infusion.......
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