I hope you are well and pain free at the moment.  I was diagnosed with pregnancy related osteo after experiencing months of pain following the birth of my second son. I was told by the NHS physio that i just needed to do gentle breathing exercises to improve my core muscles - yeah right!! After paying a considerable amount of money  seeing a private physio who took me under his wing and personally called my GP it was discovered i had four spinal fractures and T scores of -3.

Anyway i have just had a check up and i was told that they would not consider taking me off the Actonel as the risk of fracture is just too high.  I was also told that they wanted to check for OI as quite a few women who were thought to have pregnancy related turned out to have OI

Have any of you been told this?? I had blood test 4 weeks ago for DNA testing - Does anyone know how long it takes to get results.

I could call my consultant and ask her but i think she thinks i am panicking about it all as i was quite taken aback when she mentioned the OI as it is genetic.  I dont care abut me its my gorgeous babies im worried about but she doesn't get that at all!  ( My son broke his thigh bone at 2) i chased up the blood tests and i think she thinks im fussing! 

Ic annto beleive such similar experiences some of us have.

Any info/advice re OI would be appreciated.

Many thanks x