 Posted 08/09/2009 13:36:23
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| Hello everyone, I thought it might be helpful to post a quick explanation of how to post a new topic, as I've had a couple of emails from people who have had trouble. - Firstly, you need to register an account on the forum. If you haven't already done that, the link is near the top right of the page (next to the text that says 'Welcome Guest' ). Once you've filled in the form and registered, you will receive an email confirming you details. If you click the link in that email, you will be registered and ready to post.
- You'll then need to login - again, look for the link that says 'Login' next to the 'Welcome Guest' text near the top right of the page. If it says 'Welcome James' or whatever your name is, then you are already logged in. Login using your email address and the password you chose when you registered.
- The best place to post your first message is in the 'Introduce yourself' forum. Click on the text that says 'Introduce yourself' on the forum homepage - this will bring up a list of topics started by other members. If you click the 'New topic' button (above the list of topics, to the right), you will be able to start your own. Enter a title for your topic (in the 'Subject' box), and some text (in the 'Message' box). Click the 'Submit' button underneath the boxes where you type your text, and your message will be placed on the list.
- To reply to an existing topic, open the topic by clicking the link to it, and then click the 'Reply' button - this button can be found above and below the list of messages.
- You can subscribe to a topic to be sent emails whenever someone replies - to do that, click 'Topic Options' when you're viewing a topic, and then click 'Subscribe' (you can try it on this topic - the button is to the top right of this post ).
- You can find all new posts since your last visit by clicking 'Recent posts', near the top right of every page. New posts also have a blue icon next to the topic title.
If anyone has any trouble, please feel to email me (j.hobbs[at]National Osteoporosis Society.org.uk) or reply to this post. Thank you.
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James Hobbs
Electronic Communications Officer
National Osteoporosis Society
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Posted 06/10/2009 17:25:31
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| Thank you James, it helped! SheilaB
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Posted 28/11/2009 02:51:23
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| HI James, I have already registered, but have failed to log on, it just says invalid user name, my e mail says exactly the user name I have put in! what am I doing wrong?, many thanks, techno phobe gran!!
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Posted 30/11/2009 14:26:43
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| Sorry to hear you're having trouble, did you get an email from the forum when you first registered? That should contain the details you need to log on. If you can send me your username via email (j.hobbs at nos.org.uk) then I will investigate for you.
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James Hobbs
Electronic Communications Officer
National Osteoporosis Society
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Posted 01/12/2009 18:41:34
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| my mother who is 82 has just been diagnosed with osteoporosis. She has been prescribed vitamin D and alendronic acid. Unfortunately she got talking to somebody whilst exiting the surgery who told her that her friend became very disabled. This has worried my mother and I would like to share with sufferers who have lived wit the disease for many years as I am sure there are many many people.
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Posted 01/12/2009 22:51:51
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| It can be disabling - I had an aunt who was severly affected by osteoporosis, but she had also had severe polio as a teenager & arthritis, & so it's hard to say to what extent the ostyoporosis was solely to blame. BUT there are lots of people who do not get badly affected. From what I can tell there doesn't seem to be any definate factors as to who gets it worse. I'm fortunate in being relatively young (53 - diagnosed at 37) with no symptoms at all. HAs your Mum got an understanding & knowledgable doctor she could talk to? Or you could possibly phone the Osteoporosis Helpline & speak to one of the nurses.
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Posted 24/02/2010 11:27:22
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| I've been looking at my profile but can't seem to find a way to edit it. It's as if I'm looking at someone else's; there doesn't seem to be a way to click on any of the options available. Am I failing to see the obvious or is this feature one that isn't enabled for newbie members? (just curiosity really; I don't have a burning desire to add biographical detail or an avatar just yet)
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Posted 24/02/2010 11:31:22
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If you click 'Control Panel' (top right of the page, you'll need to log in first) then you can edit your profile and other settings in there. Let me know how you get on.
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James Hobbs
Electronic Communications Officer
National Osteoporosis Society
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Posted 24/02/2010 13:50:27
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Thanks for writing that James, I have been wondering how to change my username for a while now as I'm afraid I don't feel the forum is very secure as it seems anyone can read messages on the forum and so I feel rather vulnerable in giving away too much of my identity. Changing my username makes me feel much safer.
I run a Yahoo group for parents of autistic spectrum children and I know we could not run it if it was not completely secure - no one can read the group's posts unless they are members and every new member has to apply to join - it may seem a bit of trouble but it means people feel able to talk freely about their problems etc.
I've now changed my username to the name of one of my favourite poems 
Anne
Osteoporosis - Strontium Ranelate, Dekristol vitamin D3 20,000 IU/week, weight lifting, walking and vibration platform exercise, alkaline loaded diet, vitamin K2 MK-7 200mcg/day. Diabetes - Repaglinide, low carb diet and exercise. Congenital heart defect - Omacor and CoQ10. Small airways disease/asthma - Qvar 100. Probable coeliac.
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Posted 24/02/2010 14:07:15
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| Glad to help Anne. I would recommend never giving your personal details away, even your name, to anyone over the internet unless you are certain they can be trusted with the information. It's very easy to masquerade as someone else online. The forum is publicly viewable, yes - we made that decision because we felt there might be people who didn't want to post who would benefit from being able to read the discussions. The forum does have a private messaging feature which allows members to converse in private, however I would reiterate that you do need to be careful about what information you give away to people (as I'm sure you know). We have thought about making the forum private except to registered members, but it still doesn't stop someone from applying to join and then providing false details (which is sadly commonplace). I think the best policy is to be very, very protective of your personal information, especially when online.
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James Hobbs
Electronic Communications Officer
National Osteoporosis Society
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