 Posted 10/06/2010 18:04:15
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I have just discovered that anyone on Strontium Ranelate (Protelos) can join a support programme run by the maufacturers: www.protelos.co.uk/Patients You can talk to a nurse about Strontium Ranelate, any problems you have with it, and any concerns about osteoporosis ! I rang them, got through quickly, registered to join and talked with the nurse. The service is completely confidential. You also get a magazine with articles about osteoprosis. You can phone the freephone number any time you have problems or concerns. I asked about DEXA scans and how strontium affects them.
It says on the website:
If you would like to talk with a trained nurse it is important to know that all Protelos patients are eligible for a free support programme provided by the makers of Protelos. The programme is called Embrace and you can register by simply calling 0800 678 5608
And:
You are entitled to additional nurse support provided by the makers of Protelos, Servier Laboratories
- If only other pharmaceutical companies did that - most are too afraid to listen or talk to patients and fob them off telling them to see their GPs, but often GPs simply don't have the specialist knowledge that some of us need to know about specific medications.
The website also has a link to the NOS and encourages people to become members of the NOS.
Osteoporosis - Strontium Ranelate, Dekristol vitamin D3 20,000 IU/week, weight lifting, walking and vibration platform exercise, alkaline loaded diet, vitamin K2 MK-7 100mcg/d, K2 MK-4 5mg/d. Diabetes - Repaglinide, low carb diet and exercise. Congenital heart defect - Omacor and CoQ10
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Posted 10/06/2010 20:25:49
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Thank you Annabel - that's most helpful. I have just started taking SR after sustaining 3 spinal fractures. I will sign up tomorrow.
figan
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Posted 14/06/2010 20:35:58
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| How amazing that a drug manufacturer actually cares about the welfare of patients taking its drugs. I plan to ring them tomorow. Thanks for the info Ann
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Posted 25/06/2010 01:55:39
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Did you register on line Annabel? I couldn't find anything on the page to let me register 
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Posted 25/06/2010 07:48:42
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Hi Kelly Ton - I registered by phoning the freephone number that's on the website - 0800 678 5608 - it's in the section What do I need to know about Protelos
Osteoporosis - Strontium Ranelate, Dekristol vitamin D3 20,000 IU/week, weight lifting, walking and vibration platform exercise, alkaline loaded diet, vitamin K2 MK-7 100mcg/d, K2 MK-4 5mg/d. Diabetes - Repaglinide, low carb diet and exercise. Congenital heart defect - Omacor and CoQ10
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Posted 01/07/2010 13:56:46
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| just phoned and registered, very very helpful staff. Thank you
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Posted 03/07/2010 14:15:17
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