 Posted 17/06/2010 10:32:38
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| Please only reply to this topic if you would like to respond to Claire's question in the first post. Sorry everyone, but this topic is quite focused, I've going to remove any off-topic posts as otherwise it'll be difficult for us to collate the responses properly.
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James Hobbs
Electronic Communications Officer
National Osteoporosis Society
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Posted 17/06/2010 10:58:00
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I'm sorry James but I was only replying to Heather.
In the forum I run (ASD) if a thread gets changed too much then the moderator will take the posts from the changed bit and paste them into a completely new thread, thus preserving all the posts and making threads easier to follow.
However, our posts are not necessarily off topic since a discussion of one medication for osteoporosis must of necessity bring in discussion of other medications, especially when in the original post by Claire Bowring she had mentioned the side effects of other osteoporosis medications influencing the development of the NOS policy:
Claire Bowring (08/06/2010)
new data on the potential long-term side-effects of bisphosphonates and the production of unworkable NICE guidance have all influenced the development of our policy.
Osteoporosis - Strontium Ranelate, Dekristol vitamin D3 20,000 IU/week, weight lifting, walking and vibration platform exercise, alkaline loaded diet, vitamin K2 MK-7 100mcg/d, K2 MK-4 5mg/d. Diabetes - Repaglinide, low carb diet and exercise. Congenital heart defect - Omacor and CoQ10
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Posted 17/06/2010 11:51:40
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| My message wasn't specifically directed at you Anne, it's a general notice for everybody. This most certainly is not the place for discussing alternative methods of forum moderation so please contact me privately if you want to discuss that. Thanks everyone.
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James Hobbs
Electronic Communications Officer
National Osteoporosis Society
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Posted 25/06/2010 01:46:34
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| I've reached the conclusion that osteoporosis should not be viewed in isolation in post menopausal women. For me it came with a clutch of other problems including severe and frequently recurring cystitis, and skin so tissue thin I couldn't turn a page without cutting myself and was reacting to the latex content in bras and knickers. I'm on strontium ranelate for osteoporosis and HRT for other problems so can't tell if the HRT helps bone density. Biggest HRT problem is lack of information. GP doesn't understand it at all and I can't find reliable sources of info. Always had severe depression, memory and thinking problems with any form of steroid treatment so it's been a lot of trial and error to find HRT which doesn't stop life being worth living. It's not just me, I know a lot of women who have had to give up on the pill / HRT for similar reasons. GP didn't want to prescribe HRT as I still have my womb and he seems to regard this as wrong. He prescribed progestorone as well, but in a massive quantity 'because that was the amount in a combined HRT treatment'. There is a real need for research into the side effects of HRT, and ways of finding a version which won't cause side effects in a particular individual. Without that, people won't stick with it when depressive side effects kick in.
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Posted 04/07/2010 22:03:55
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| I'm 45yrs old and was px'd low dose HRT earlier this year following my osteoporosis diagnosis. I was not offered any other treatment. I was told HRT would be the most appropriate course of treatment for me considering my age/early menopause etc. I had suffered horrible menopause symptoms for a few years but had never even considered HRT. Being a natural process (although somewhat early) I felt I should be able to deal with the symptoms without drugs. However, now I wish I had started treatment for symptom relief two or three years ago and possibly my bones would be in a better state now. Who knows? I do worry about possible side effects of course but also daren't not take it. I would obviously be interested to read reliable evidence of HRT improving bone density.
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Posted 06/07/2010 12:07:39
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| This is surely right that every medications can have its own after effects. Many people get side effects from some pills or supplements, and then her physician ask her to get some more tests according to doc she should not get any type of pills…
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Posted 08/07/2010 11:50:19
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I am trying to get some feedback in order to help my mother. My mother is 75 and she has been on HRT for 27 years until February this year when she has stopped taking it. She has recently had 2 months of severe headaches which we are trying to find out the cause. After a CT scan and MRI it seems she has over the past 4 years had a few minor strokes she wasn't aware of - we thought they were something else at the time. She has been very healthy and active on the whole. But this isn't the cause of the pain this time. The doctors and consultants are at a loss, but my mother consistently says when asked about the pain that it feels like it's in the bones, ie the skull bone. Her head is also tender to touch and the pain moves to different parts.
Do you think osteoporosis could be happening in the skull bone - is this possible? And could this be the withdrawal symptoms from a long period of HRT intake?
Any feedback would be helpful for us the decide what the next steps are.
Thank you
Deborah
Deborah
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Posted 08/07/2010 16:11:09
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| Hi Deborah - this probably isn't the best place to discuss this issue, if you repost your message in the 'Introduce yourself' forum you might get more of a response from other forum users. This topic is for commenting on the charity's HRT policy. Thank you.
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James Hobbs
Electronic Communications Officer
National Osteoporosis Society
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Posted 10/07/2010 17:54:33
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| I started taking HRT in March 1992 when I was 29 due to a total hysterectomy. I continued to take until March 2009 and had absolutely no problems with it all, only stopping it as I'd missed a few weeks taking it due to ill health so thought I'd stay off it, as my hormones would be naturally decreasing anyhow. I was then dxd with osteoporosis in September 2009 so doesn't look like it did much in the way of good for my bones, but who knows, perhaps they would have been worse had I not taken it. I asked my GP should I go back on it and she said that boat had long sailed so no point going back on it, especially as I'd done so well menopausal sympton wise since stopping.
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Posted 10/09/2010 12:40:35
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dont know if you are interested in men in this thread but here goes anyway!
I was diagnosed with secondary hypogonadism about 5 years ago & have been on HRT ( Testosterone replacement) ever since.
last week I was diagnosed with OP in my spine so the HRT doesnt seem to have helped me in that department any!
(55 year old male, fit, [thought I was healthy!] BMI of 24, healthy diet, takes plenty exercise, & looks at least 10 years younger! )
Id never have found out if I hadnt asked my doc for a DEXA!
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