National Osteoporosis Society - Osteoporosis Forum / Osteoporosis Forums / Introduce yourself

New here!! Would love some advice!

AmyStringer — Sun, 18 Dec 2011 23:06:10 GMT

Hello!

My names Amy.. I'm 28 boxing day, married to lee and we have 2 gorgeous daughters.

I had a hysterectomy last year after years of illness. In march I fell from standing height and my left arm snapped! When I had my plaster off my arm still hadn't healed properly so I was given a bone density scan which showed I had osteoporisis, caused by my hysterectomy.

3 months ago I went to my doctor with terrible back and hip pain and given tramadol and cocomol. Pain only got worse and really affected my work (i work on a palliative care ward 12 hour shifts so constantly on my Feet). I had another scan and it showed the osteoporosis has advanced quickly and my hip is now the worst.

Last week I had a steroid injection in to my hip and was told I would have this done every 6 weeks. After the injection I only got 2 days of being pain free and now it's back with a vengeance. I've been told to stop work which I just can't do.. I adore my job. I'm in a lot of pain, have to sit to one side, sleeping is terrible and my foot is turning in when I walk. Today my knee was very swollen and the nurse at work had a look and said its because it's taking full impact when I walk as my hip physically can't anymore.

I'm going back to the doctors this week but I know thes not a lot they an do until I'm referred to a specialist. I hate tramadol and the cocodomol doesn't do an awful lot.

I'm really struggling to find support and someone that understands as I'm so young for this.. Everyone thinks its an elderly disease so I feel quite alone.

I would love someone to talk to that understand!

Merry Christmas! Xx

hi, just been diagnosed

PaulaK — Tue, 31 Jan 2012 18:59:23 GMT

Hi everyone, I was recently diagnosed about three months ago and to be honest it has taken me that time to properly come to terms with having osteoporosis. I first went to the doctor in late September following a slip down a few stairs - thinking I had just jarred my spine.I mentioned that my two aunts had both suffered from osteoporosis and the doctor sent me for a dexa scan.As the pain in my back got better and better,I kept putting off going back for the results, thinking that as I felt fit and well there was no point. Was sure I was absolutely fine. Even when the doctor rang me at home to tell me I was suffering from established osteo I convinced myself that it wasn't too serious really.
However my scores were spine:-3.3, hip -3.0. Of course my doctor wanted to prescribe bisphosphonates, but by then I had had a little time to research osteoporosis medicines and IWas terrified ! I have been doing research on line, and have also read posts on this forum,in order to try to educate myself.To be honest, I have learned more from reading the experiences of other sufferers than from the doctor( although the nurses on the helpline have been fantastic).
At the moment I am trying hard to make my diet as alkaline as possible, and to get as much calcium as I can in my diet-kale, salmon yogurt, sardines,fruits and veg etc.I also have some vitamin d drops, although I find after taking them for more than a few days I get an awful migraine like headache. So I take them for a few days, have a rest, then start again! I take two drops which is about 400I.U. a day. Does anyone else have problems with this vitamin? As I say, I am just in the early stages of finding out about this scary condition.Than k you for taking the time to read my post.
PaulaK,

Strontium ranelate ( Protelos)

Indy231 — Thu, 17 Feb 2011 14:51:11 GMT

Hi Everyone

I had a scan three weeks ago which said I had Osteoporosis in my spine. Seeing GP next week and am supposed to go on to Alendronic. I am very unwilling to do this because of the side effects. My husband has terminal lung cancer and I need to be free of any problems, ie- painful joints, tiredness. Can my GP prescribe Storontium with out me having further tests? I noticed it has fewer side effects.

OP and medication

Andrew — Tue, 31 Jan 2012 22:12:39 GMT

I was prescribed Alendronic Acid 40mg 1x week however i had bad side effects Joint Pain Sickness so i asked my GP for something different.He seemed to struggle to find an alternative but gave me Risedronate 5mg Daily.I am suffering the same effects with these also plus loss of appetite.
I already take Calcium.I was wondering if anyone here can advise an alternatives so when i see my GP i can go with a bit of knowledge

Thanks Andy:

Need advice on aLendrnic Acid

GIna — Wed, 01 Feb 2012 18:12:48 GMT

Hi
New to forum today. Started Alendronic Acid 2 weeks ago. The day after my 2nd dose had flu like symptoms felt dreadful. I have severe joint pains which are so bad I have been in bed. All my joints are affected even fingers and toes!. I can barely walk without strong painkillers. I was advised to perservere as majority of these symptoms will go after a few weeks. I felt ok about this untill I started reading the messages about this drug. Now I don't know what to do . Do I perservere or change to another one like strontium Ranelate? Please can someone advise.
Gina

problems taking vitamin d

PaulaK — Wed, 01 Feb 2012 17:32:17 GMT

Hi Anne,
Thank you so much for your reply, and for answering my question about vitamin d. I think your suggestion that I may be reacting to something in the drops rather than to the vitamin d is a good one. I think I will try another preparation to see if it is better.
I am trying to learn as much as I can about osteoporosis because I am very nervous about taking the bisphophonates (actonel) which my doctor has suggested. My hope is that I may be able to stop my bone density going any worse with a good diet and exercise.Fingers crossed!
This forum is so good because at least you realise you are not alone.
Kind regards, Paula.

New to forum

GIna — Wed, 01 Feb 2012 16:52:22 GMT

Hi
My name is Gina and I have just started on bisphosphanate treatment. I have only taken 2doses of Alendronic Acid and experiencing severe joint pains. Looked up side effects on Internet but nowhere does it say this is common and can be transient. I contacted osteoporosis helpline and was expecting the usual "go and see your GP". I was very relieved to speak to a very knowledgeable nurse who was able to give me information and answer my questions. What a relief to speak to someone sensible.
This is a new diagnosis for me so I hope the forum can give me support from people with experience of this condition
Gina

Hi, just been diagnosed

Kate Boutinot — Fri, 27 Jan 2012 08:05:16 GMT

Hi, just signed up for this website having been diagnosed this week. Broke my wrist last October. Have been prescribed Alendronic Acid and the chewy calcium tablets. Now worried reading about other peoples experiences with A A.
On a lighter note......looking at the calendar, I share a birthday with about 67 other people ( 29th March ) compared with a lot of dates that only have 1 or 2 birthdays. 26 th March has 91 birthdays. We must all be Christmas and New Year babies! This says a lot about the sex life of the Nation I suppose !

Aclasta - Zoledronic Acid - worrying side effects

SueLeather — Wed, 29 Jun 2011 17:39:22 GMT

I have just had my first Aclasta infusion... nine days ago. This is annual infusion done in a clinic and takes approximately fifteen minutes. I was told about the side effects, flu symptoms, aching joints, headache, nausea, and more but also told that not many people have serious side effects and most are just within the first three to seven days. Well at this nine day mark, my feet and knees are painful and swollen, I can't wear shoes or get into the bathtub. My shoulders are so stiff that I cannot drive safely. My headache has just about gone, thank goodness... My hands ache... in fact my whole body aches. I'm worried as this is a once a year treatment, it must be a slow release process so how long is this going to go on for. Has anyone else had these reactions to Aclasta? and if so how long did they last?

Prolia

Elizabeth Sal — Wed, 04 May 2011 22:23:20 GMT

I had my first Prolia injection in february after suffering bad side effects from alondronic acid.I have now suffered on and off pain in my groin ever since the injection in my stomach and also pain in the rib area of my chest which I think is wind but this could be from the calcium tablets that I also now have to take twice a day.Would love to hear from someone else on prolia as don't know anyone and am really worried about it all.Thanks

Can anyone put my mind at rest ?

jesdyl — Fri, 27 Jan 2012 19:38:52 GMT

Hello, new here so looking for as much information as possible. Recently diagnosed (LS -3.3), my GP only offered Alendronic Acid but after reading posts here I decided against taking it. I had my first OP appointment this week, spoke to the nurse about my concerns and eventually after much debate had the option to now try Strontium Ranelate (Protelos). Obviously all medication has its side effects Protelos seems to have had quite a lot of success. I would be grateful to hear from anyone who has taken this, good and bad so I can make an informed decision whether this is right for me. I think we should all have the right to choose, after all we're worth it !

Thanks to everyone here for sharing your experiences

Jackie

How to post a new topic

James — Tue, 08 Sep 2009 13:36:23 GMT

Hello everyone,

I thought it might be helpful to post a quick explanation of how to post a new topic, as I've had a couple of emails from people who have had trouble.

Firstly, you need to register an account on the forum. If you haven't already done that, the link is near the top right of the page (next to the text that says 'Welcome Guest' ). Once you've filled in the form and registered, you will receive an email confirming you details. If you click the link in that email, you will be registered and ready to post.
You'll then need to login - again, look for the link that says 'Login' next to the 'Welcome Guest' text near the top right of the page. If it says 'Welcome James' or whatever your name is, then you are already logged in. Login using your email address and the password you chose when you registered.
The best place to post your first message is in the 'Introduce yourself' forum. Click on the text that says 'Introduce yourself' on the forum homepage - this will bring up a list of topics started by other members. If you click the 'New topic' button (above the list of topics, to the right), you will be able to start your own. Enter a title for your topic (in the 'Subject' box), and some text (in the 'Message' box). Click the 'Submit' button underneath the boxes where you type your text, and your message will be placed on the list.
To reply to an existing topic, open the topic by clicking the link to it, and then click the 'Reply' button - this button can be found above and below the list of messages.
You can subscribe to a topic to be sent emails whenever someone replies - to do that, click 'Topic Options' when you're viewing a topic, and then click 'Subscribe' (you can try it on this topic - the button is to the top right of this post ).
You can find all new posts since your last visit by clicking 'Recent posts', near the top right of every page. New posts also have a blue icon next to the topic title.

If anyone has any trouble, please feel to email me (j.hobbs[at]National Osteoporosis Society.org.uk) or reply to this post.

Thank you.

Alendronic Acid - side effects

Vicrose — Tue, 17 Jan 2012 14:21:03 GMT

Hi, I have recently been diagnosed with osteoporosis and have been prescribed a weekly tablet of Alendronic Acid. After the first dose I experienced pain in my calves and thumbs which lasted until the next dose.

After consultation with the pharmacist I didn't take my second dose for a further two weeks. Having taken the second dose I have had severe pain in my lower and upper left back which felt like a tight band around my back. I was unable to move and thought I had slipped a disc. I have never known such pain and am frightened of taking further doses. The pain has now subsided but left me sore and worn out. Anybody else experienced this. Thank you

Alendronic Acid - side effects

Stephen G — Sun, 12 Jun 2011 19:09:35 GMT

I have been taking Alendronic Acid since July 2010. As soon as I started taking it I noticed that the little finger on my left hand around the joint has become 'locked' on waking up. This loosens out during the day but remains a bit painful and the joint not as flexible - almost like an arthritic condition which I never had before. I mentioned this to the Osteoporosis Clinic after 2 months on being on the medication in Sept 2010 who thought it was coincidental. This has now become more prounounced. Has anyone had this kind of reaction on this medication?

Side effects to Osteoporosis medication (Strontium Ranelate)

Dee Jay — Fri, 30 Dec 2011 12:20:25 GMT

Hello All,

I am a 75 year old male and was diagnosed with Osteoporosis about 4 years ago. I was given Actonel once a week tablet, but finding this did not agree with me, the GP changed to Strontium Ranelate. I have been on this for about a year now, and 3 months ago, my skin on the lower arms erupted in to sore spots and blotchy skin. It is uncomfortable enough to wake me up at night. I have contacted Serviers the makers of the drug to check if side effects can take place all this time after starting SR and they said that it is possible at any time. Has anyone out there had similar experiences.:w00t:

New Member seeking advice

DJH — Wed, 04 Jan 2012 14:29:57 GMT

Hi. I am new to this site and am looking for advice about osteoporosis. I am 44 and for the past year have had suspected menopausal symptons. While on holiday in August I slipped on a step and broke my wrist ( right in front of the colloseum in Rome! ). I have never broken anything before. Just before Christmas I was confirmed as being menopausal and have started taking HRT due to my age ( I also take thyroxine due to having my thyroid removed ). I am now wondering whether my break could be anything to do with all this and if it would be advisable to get this all checked out.

Any advice would be really welcome!

Have you increased your bone density and by how much?

AndyJ — Sun, 15 Jan 2012 11:46:17 GMT

Hello,

I'm keen to know if any of you have INCREASED your bone density and the specific details. From what to what?

I'm keen to know because I am 28, male and on Alendronic Acid and Calceous tablets. My DEXA scan last year said my spine was -2.8. I'm hoping that I will have an increase with the drugs and exercise and generally feeling better after IBD and finished using PRED.

I'd just like to know what is realistic and hear/read some examples. I've been told my BMD will likely increase in the year but nobody will obviously say how much - I apprecate that but it would be nice to know what to expect roughly or what to work towards. (For my example what could I realistically increase to from -2.8?).

Look forward to hearing from you all.

Milk - Is it good or bad?

AndyJ — Sun, 15 Jan 2012 11:37:51 GMT

Hello,

I'm confused any hoping someone can confirm.

Is drinking milk good or bad for your bones? I've read both. I drink the normal semi-skimmed.

I have some with breakfast. Always in tea/coffee about 3 times a day.

I drink milk with my main meal at night - around 2 glasses.

Thanks.

OP and Under Active Thyroid

Andrew — Mon, 26 Sep 2011 22:20:25 GMT

Hi

I was diagnosed with OP 2 weeks ago and already suffer from Pancreas Problems.
Recently i have been tired depressed and then today i get told i have an under active thyroid which i was wondering can OP be linked to this
My mother has had her thyroid removed to cancer.

I am now felling even mo depressed and totally fed up i am only 33
cheers Andrew

New to Forum but not new to OP!

Jadak — Tue, 10 Jan 2012 13:43:30 GMT

I was diagnosed with OP at 44yrs (I am now 53). I have had all the available medication and still ended up with very poor BM and I have a a spinal score of 3.4 and hips score of 3.1. I am back on Alondrate and Adcal.

I have constant back and hip pain - does anyone else have this? I have had various pain relief (Gabapentin, Amytriptiline, patches) but have ended up back on Co-codamol because nothing really seems to actually give me any relief and my GP does not seem to take on board my pain and I feel that I am seen as wasting their time.

My teeth seem to be falling to pieces but my dentist insists it is not related to my OP - does it affect your teeth? any one any opinion on this.

Until last year I was a health visitor but the nature of the job and my constant pain saw me finish my career in May. My employers were wonderful - they really tried to redeploy me but there were no suitable jobs available sadly.

I am now at home on benefits - facing a tribunal because the benefits bods have decided I am fit to work and not entitled to Employment and Support Allowance. I am busy gathering evidence to support my appeal. I do receive DLA and Motorbility.

I feel totally down about everything at the moment. I feel I have lost my health, my career (for which I worked so hard to achieve) and my self esteem and that I am not believed by the benefit dept. Please don't get me wrong - I have a wonderful family and friends but at the moment it all seems a little hard going.

Other than that hello lol!

New here and need some advice

Sieglindec — Thu, 05 Jan 2012 12:42:22 GMT

Hi, I am new here
I guess I am in trouble just now. Been diagnosed with quite severe Osteoporosis 6 years ago at age 52 and had several fractures so far. Right now I have 2 broken vertebra's (L1 and L3), which have been very painful (much worse than the others) for the past 4 weeks. Problem is that everyone gives me different advice and as I live in Spain, the language is at times difficult. The latest Traumatologist told me to stay in bed for 2 weeks to encourage the healing process and prescribed another similar product to Fossamax.
This is horrible, as I am a very active and independent person.
I have an underactive Thyroid which was only diagosed 6 months ago and I am on Armour now hoping that this would allow minerals and vits back into my system, but ... The original GP who diagnosed the Osteoporosis never tested my Thyroid, but put me straight on Fosamax, which did not agree with me at all. I do try to have a good diat and take Vit D3, K2, magnesium, zinc, an osteo preparation called Osteofood from Higher Nature. Been doing 4 km per day power walking with weights round my wrists for 1 year and before that I went to the Gym 3 times per week.
My big question is - can i get back on my feet using a natural approach? I hate taking drugs at the best of times and wondered if anyone has some good suggestions to A. How can I get back on my feet quickly? B. has anyone heard of or is following the 'Save our Bones' program? C. Which Osteo drugs (if any) are worth checking out?
Hoping for some replies and help, I need to tap into your experience. I always believed I am indistructable and have led a very active and full live, so this is very hard for me to swollow :-(
Many thanks
Sieglinde

Hi

claira — Tue, 03 Jan 2012 19:53:57 GMT

Hi everyone.New to the forum so I thought id introduce myself!I am 40 years old and have had osteoporosis since i was 29 .Mine was unfortunately caused by Cushings syndrome,and a lifetime on steroids for various atopic diseases, mainly severe brittle asthma .I have broken my wrists 9 times and am to undergo my 5th surgery next Thursday.I am having a replacement ulnar,as it is so damaged from all the fractures.Blooming plaster again!!The worst thing now is that my body is now not making its own steroids so i am reliant on taking them for life,Addisons disease.This unfortunately will accelerate my bone loss:( . I try and keep as active as possible,but the cushings has affected my muscles really badly to which restricts my mobility.I have so far received 2 aclasta infusions(annually) and to date haven t had too bad side effects.I am due my next in march.I went onto Aclasta as i suffered from severe indegestion,and had a fundoplication operation to try and correct this.I was previously on accolate and calcium.:POsteoporosis is no fun at all,but I find it easier to cope with knowing there is a lot of useful information about and forums like these. HI EVERYONE!!! CLAIRA

younger people with osteoporosis

Jan61 — Mon, 12 Dec 2011 14:02:39 GMT

Hello I am an osteoporosis suffer in my sixties my daughter in her early thirtys has been diagnosed with severe osteoporosis of the spine and hip. We are desperate for some help, advice or some point of contact for young sufferers. Everything we can find including medication is aimed at post menopausal women. She has not had a family and is ready to start one but is obviously very concerned about whether she should get pregnant. Any help would be gratefully received.

New member - warned by dentist!

FranE — Thu, 28 Jan 2010 20:09:13 GMT

Hello everyone, I was diagnosed with osteo about 3 years ago by accident, having had backache which turned out to have been caused by arthritis, but a dexa scan revealed osteoporosis as well. I am 72. My doctor prescribed alendronate, which didn't suit me, so I continued with calcium and exercise for 2 years, but a further scan showed some deterioration, so I decided to give the alendronate another go. After about a month I visited my dentist, who, when he heard I was on alendronate, warned me to think very carefully about it, and I gather that many in the dental profession have doubts about the side effects of bi-phosphates, particularly in relation to extractions and implants (which I may have to have). Has anyone else had this reaction from a dentist? Needless to say, I have taken no more alendronate, and am due for a further hospital consultation next month with a view to having a different prescription.

PLEASE GET INVOLVED: 25 words for a break free future

Siobhan — Tue, 28 Jun 2011 18:10:39 GMT

We have just launched our 25-words for a break free future campaign and we need your help.

All you need to do is write, in 25 words, why osteoporosis needs to be given greater priority.

Please email your 25 words, along with your postcode to media@nos.org.uk

Your story is unique and your words can help us to convince governments and local health authorities that osteoporosis should be given greater precedence.

We need to influence the negotiations on the UK-wide Quality and Outcomes Framework (QOF) which will begin in August. We also want improvements to services for people with osteoporosis. Weight of numbers will be crucial, so please also encourage work contacts, friends and family to get involved - as many people as possible - the more responses we get, the stronger our message will be.

You can send us your words anonymously, but if you include your name and postcode we can use them to try to improve services in your local area.

If you would like to help us with our media work in publicising this campaign, please also include a telephone number so that we can contact you.

Thank you,

Siobhan Hallmark

Press and Publicity Officer

Swollen legs, ankles and feet

lmp3 — Sat, 30 Jul 2011 15:47:14 GMT

Has anyone experienced swelling of legs, ankles and feet whilst on Alendronic Acid/Adcal D3? My mother has been taking both for about 5 years and has very recently started with these symptoms which are severely restricting movement. Joints pains too have gradually increased. Hospital tests are not really showing anything.

Linda

Confusion Re: Dexa Result

Lydia — Thu, 15 Dec 2011 14:07:15 GMT

Hi Everyone, I had my second dexa yesterday after 11mths of Forsteo. My last scan in June showed a great improvement in my T score from -4.1 to -3.4, however, yesterday my T score was -3.6! My OP Nurse was adamant that I am making new bone and she showed me the figures on part of the scan result and also on the computer image of my spine which showed the bone to be thicker, which I have to say it did look a lot better. She advised me not to get too hung up on T scores as they can vary even by being in a differnt position on the scanner than last time!!!! My hubby and I spent at least an hour with the nurse following the scan trying to ascertain how I can possibly be improving if the figures don't prove it, anyway the explanation was going right over my head and has left me very confused. I have apparently increased by 24% in my spine and 8% in my hips since last January which is just fantastic, but yesterdays T score has puzzled me. Has anyone got any knowledge of T scores that will help my puzzled mind.

Lydia x

My Dentist would not do my implants because of Alendronic Acid

LindiLu — Wed, 14 Dec 2011 20:19:26 GMT

I need 3 implants and finally got the courage to get them done, but my dentist refused when I told him I was taking Alendronic Acid for osteoporosis. I'm 50 and a DEXA scan confirmed that I had osteoporosis of the back and osteopenia of the hip and so my GP prescribed AA for me... he never asked if I might be considering dental implants or needed a tooth extracted, which I do. One tooth urgently needs removing as it's broken up and now at risk apparently of an infection, two other teeth need removing but as my case is being discussed now with the surgeon I'm too scared to have these ones removed. I've read lots about this drug and think I will stop taking it. I go to the gym regularly, do not eat processed foods, crisps, sweets or biscuits etc, I don't smoke or take any other drugs and both myself and hubbie have stopped drinking alcohol ... so I think I'm gonna concentrate on keeping healthy and stop taking AA. Perhaps when there's some positive feedback about this drug I might change my mind!

Lynn

Recently diagnosed age 39 (40 in a few weeks)!

Jaye — Tue, 12 Jul 2011 10:48:58 GMT

Hi all

I am 39 years old, soon to be fourty (eeks) and was recently diagnosed with Osteoporosis. I have quite a funny story to tell about that which all started last year at the dentist. on a routine check by an 'old school' dentist and a complaint about bleeding gums he asked the question about Osteo and at the end of the session said I should see my doctor. Worried at this point since he added he would 'pray for me' off I went home, discussed with hubby, made appointment with Doctor who pretty much ignored the comments that the dentist had read an article about bleeding gums being linked. He totally threw this out as being ridiculous. The only time I broke a bone was age 7ish.

A year later and my mother breaks her foot in garden, x rays led to osteo so in turn, my sis and I were concerned. I paid for a private Dexa scan and yes it showed up as -3.3. Needless to say I was abosolutely gutted. Off I went again to the docs (made sure same one) and showed him the paperwork. I get a full scan and its -3.7 mainly in spine and hips. I had put in a complaint about the dentists behaviour (now apologised profusely) he was correct in his thoughts.

The doc prescrived calcichew and alendronic acid, I have only taken one and refused to take anymore. Changed to a more knowledgeable doctor who is helping me on an exercise path as at this age I do not want to be on these types of drugs. I am waiting for an appointment with an exercise coach to go through bone building with me and in the meantime my 'exercise crazy' friend is out walking/light jogging with me twice a week, I am up to 3 miles so far and looking to get on the 0 to 5k program.

I am focused now and in 12months will be re-tested to see if there has been improvement through exercise. I was also told about a cream that can be used.

The reasons I dont want the drugs are really because of my age and I am post menopausal and regular as clockwork. I do not like the side effects either.

My Aunt recently sent me an article about a drug called 'Alcasta' maybe when I am more towards 50 I maythink about it.

how I have not broken bones other than my collar bone at 7 I do not knw since I have been a keen motorcyclist and fallen off several times! All of a sudden though I have tripped over he garden hose pipe more than ever!

I have a daughter and stepson who both know I have bad bones so are well informed 9no bouncing on trampoline mummy)! or riding motorbikes ;o(

Thats my story up till now. My sis has it too but not as bad thankfully. Whether mine is also linked to having an eating disorder as a child, who knows. It does affect people of all ages, even children and should not be just focused on older people.

If you got this far reading all that, well done! and thanks:D

Take care all ~ J

Back again at the forum

Mariannefr — Sat, 10 Dec 2011 16:18:05 GMT

Hi, just to say that I am back at the forum, having moved from Hong Kong to France, I was here previously as Mariannehk, now as Mariannefr. I take Strontium Ranelate and have no problems with it, and luckily continue with my prescription in France. I also take Vitamin D3 supplements of 5,000 iu per day and have recently had a 25-OH D3 blood test which has upped my levels to 63.10 ng/ml from 37.5 ng/ml six months ago, so feeling happy and still taking it daily. No more pins and needles in my hands or legs and although it may be coincidental -less pain and back spasms :P

Zoledronic Acid [Reclast} Yearly Infusion

Ros — Sat, 02 May 2009 13:13:21 GMT

Hi,

I would like to say hello, and ask if anyone out there has had a yearly infusion of Zoledronic Acid [Reclast]and if so what was their experience of this?. I have been having three monthly infusions of Ibandronate[Bonviva]which seem to have gone quite well, but I am a little worried about going for the yearly one as it is a much higher dose going into your system in one go.

Ros

Side effects of Alendronic acid and Adcal-D3

Kath — Mon, 02 Nov 2009 14:42:01 GMT

I was prescibed daily Adcal-D3 and weekly alendronic acid about six weeks ago. After a month or so I became very constipated, so much so that I had to have two visits from the District Nurse in one afternoon to releive the intense pain. I was then prescribed Movicol, two powders a day, which works more or less. It seems completely wrong to me that I have to depend on daily laxatives, necessitated be the other prescriptions. Is this "normal" or is there an alternative? Kath

vibration plate training

pam.f — Wed, 07 Dec 2011 20:26:07 GMT

I am thinking of getting a vibration plate , has anyone any experience of using one ? or know which type is suitable ?. has any research been done on their effect on bone density . I have recently finished taking AA , have a t score of -2 (spine ).

newbie

Carol — Wed, 07 Dec 2011 21:08:24 GMT

Have been diagnosed with severe OP & suffered several spinal fractures which has left me feeling deformed & loss of confidence, does anyone else feel this? Have been trying to find out if anyone knows of any coffee mornings etc where I live in Mansfield, Notts as it would be nice to meet other sufferers & perhaps give each other support. Carol:)

Young men with osteoporosis?

simon coleman — Mon, 24 Jan 2011 11:30:09 GMT

Hi, I was diagnosed with osteoporosis at 42. I know this is pretty rare. Consultant was baffled at first (even though there is a family history). Finally, diagnosed a testosterone deficiency. I am taking replacement hormone, vitamin D and calcium supplement, and have a fairly good balanced diet but bone density has continued to gradually deteriorate. GP has just put me on Alendronic Acid. I also try to keep fit and active. I like exercise! I'd like to find out if there are any other men out there under 50 who may have a similar experience-and any good ideas about further treatment/prevention. Thanks, guys! Simon

New member with a question to ask

lynneh — Sun, 04 Dec 2011 18:43:44 GMT

Hi All

After viewing postings on this forum for a few weeks, I've now decided to join. as it seems a great way to share experiences. I recently had a bone density scan at my own request as I had suffered 3 fractures in 5 years and also have constant back pain. My scan revealed a T score of -3.1 in my spine and I have today (reluctantly) started on AA. One of my concerns is that the drug seems to be aimed at post menopausal women. I am pre-menopausal and am wondering if AA will now force me into an unnatural menopause. Is anyone able to answer this question for me please?

New member

Sandra111 — Sun, 04 Dec 2011 21:33:29 GMT

Hi everyone.

I have just been diagnosed and am currently in a panic. I am 46 years old and wasn't expecting the diagnosis.

I have not been prescribed anything other than calcium and vitamin d at the mo but have been told to consider biophosphates. I am afraid to take them due to the jaw problems and other side affects that they can cause. I heard there was another drug that can be taken without the side affects of biophosphates but I can't remember what it was called.

Any ideas?

Another Newbie

Net123 — Wed, 19 Oct 2011 13:52:41 GMT

Hello everyone, hope you don't mind me popping in, but I have a few questions about osteoporosis.

I am a menopausal 51yr old and my Mum was diagnosed late in life (year before she passed away). She reached up to get something and her shoulder crumbled and quite quickly after she had spine curvature, which was very painful.

My sister (15yrs older) was put on HRT and has been taking calcium tablets since coming off, for her bones. She has just returned from the Drs because of pain in her upper back and has been told that she has the start of spine curvature, which is hereditry.

My worry is that, I slipped last October and landed on my side, dislocating my ankle and breaking my leg in 2 places, resulting in surgery and metal plate and pins on both side of my ankle. I asked the Dr about osteoporosis, who said they don't do anything until the menopause. I have said that I am getting the night sweats and day sweats and all over the place with my cycle, plus I've mentioned both my Mum and sister, but they won't do anything until my period has stopped completely. I am so confused by this...

I do eat heathily and have a regular exercise plan because of my injury to get my leg moving and that is Aero Pilates...I have a machine next to the bed and do it every single day because it is low impact on the joints and the exercises are done lying down, plus there is a cardio board at the end which you rebound off. This has helped tremendously with the movement, but I am so worried about osteoporosis...should I be??

Sorry for such a long introduction and waffling on a bit.:)

Question about D3 storage and link to article about fractures

Lynne H — Wed, 30 Nov 2011 16:19:17 GMT

http://www.healthcentral.com/osteoporosis/c/76444/147539/spontaneous/?ic=4027

If it will open the above link is an article about spontaneous fractures associated with treatment.

I also have a question about vit D3. If you go on holiday to a sunny climate, can your body actually store the vit D it has made during that holiday?

I am unlikely to get a repeat vit D blood test, to actually try it out, but I wondered whether anyone had seen any references to vit D3 storage, how long it lasts in your body and would you need to still take supplements?

Osteoporosis in Men

Paul Mylor — Mon, 21 Nov 2011 19:56:17 GMT

as an introduction to the forum I wrote ""hello new member - 62 active male, polio as child. diagnosed with O 1996 10 years injections of senserone(?) then no treatment - xray confirms sclerosis spine becoming further worn - (GP technical term knackered) prescribed Alendenronic acid but so concerned about potential side effects. Any out there any with male experience?"

to date I have had no response yet I see other newer entries have - so it's either to do with the way I worded my intro or there are no members with any experience of osteoporosis in men. I am obviously worried about taking alendronic acid as the accompanying sheet describes side effects which seem extreme. Perhaps there are ladies out there who would like to tell me how they feel about taking it and hopefully there are others who have a lot to say in support of taking it.