﻿<?xml version='1.0' encoding='UTF-8'?><rss version="2.0" xmlns:dc="http://purl.org/dc/elements/1.1/"><channel><title>National Osteoporosis Society - Osteoporosis Forum / Osteoporosis Forums / About Osteoporosis </title><generator>InstantForum.NET v4.1.4</generator><description>National Osteoporosis Society - Osteoporosis Forum</description><link>http://www.nos.org.uk/forum/</link><webMaster>D.Hughes@nos.org.uk</webMaster><lastBuildDate>Wed, 08 Feb 2012 00:55:40 GMT</lastBuildDate><ttl>20</ttl><item><title>Stopped Alendronic Acid but still having pain</title><link>http://www.nos.org.uk/forum/Topic7970-3-1.aspx</link><description>Stopped Alendronic Acid a week ago due to side effects. Feel better but still having pain in joints and my fingers joints are very swollen and painful. Ha vying difficulty using hands . Has anyone else had this and if so how long did it last for? My GP had never heard of anyone else having severe joint pains before.&lt;br&gt;Gina</description><pubDate>Mon, 06 Feb 2012 22:09:57 GMT</pubDate><dc:creator>GIna</dc:creator></item><item><title>Vitamins and supplements</title><link>http://www.nos.org.uk/forum/Topic7927-3-1.aspx</link><description>Very new to all this and still trying to work around the message system.!.from messages I have looked at lots of people seem to be on bits and supplements. I am on vit d3 2000iu daily bit nothing else. Some people seem to be on vit k and magnesium. Is this standard for OP? As in should I also be taking these vitamins?. Can any one advise me or suggest a book or web site to look at. &lt;br&gt;Thanks Gina</description><pubDate>Thu, 02 Feb 2012 16:59:38 GMT</pubDate><dc:creator>GIna</dc:creator></item><item><title>Boron Supplements</title><link>http://www.nos.org.uk/forum/Topic7934-3-1.aspx</link><description>Hi everyone,  I have not been on the forum for a while, so hello to you all again.  As I have not been very successful taking most of the medication for OP so I decided to try Boron supplements 3mg  1 a day with Magnesium, Calcium, Vit D and K.1 and 2 and a Collegen supplement ( along with piles of Kale!!) Up to now I have had no unpleasant side effects, so I hope it is working on my bones!!  I have read some good reports on Boron.  Apparently it can also help with other functions of the body too.  I was wondering if anyone else on the forum is using Boron, if so I would be interested in their opinion.  I realise no one can tell if it Boron works until the next Dexa Scan, but thought it an interesting mineral with no horrible side effects.  Look forward to hearing from you.  Hope you are all having a happy day:) Rosiejay</description><pubDate>Fri, 03 Feb 2012 14:33:25 GMT</pubDate><dc:creator>Rosiejay</dc:creator></item><item><title>Trying to heal 4 fractures - outch!</title><link>http://www.nos.org.uk/forum/Topic7794-3-1.aspx</link><description>Hi all again&lt;br&gt;Well, I thought I had 3 fractures, but following the xray on Thursday, it turned out to be 4 of which 2 are L and 2 are T ones. Never in my life have I experienced so much pain and depression and fear. The Traumatologist at the Hospital was pretty useless and suggested an Operation to srew a plate into the adjoining vertebras - oh yes, a nice little earner, which may well leave me a a couple of years with a piece of metal floating freely in my back :-(&lt;br&gt;Thank god for the support and information I received here from Forum members and one in particular who had been in my position 14 months ago. &lt;br&gt;Turning from a very active person into a physical wreck who needed my husband to even help me walk the few steps to the Loo was/is hard. The past 7 weeks have been hell, but I am now seeing a little spot of light and that might mean that I am arriving soon at the end of MY tunnel. &lt;br&gt;There is far too little 'informed' information on what to do and how to stay positive when one is going through this. I had to research hours upon hours to find some constructive help and encouragement and a way forward. &lt;br&gt;We all want to have some quality in our lifes and not just be used as Guinney pigs, so when I say from my own experiences ' I don't trust Doctors without doing my own research' I am talking of my own experiences in this situation. &lt;br&gt;Thanks again for having taken the time and bother to help me - maybe in time to come I will be able to do the same for someone who is going through this awful situation.</description><pubDate>Sat, 21 Jan 2012 09:46:59 GMT</pubDate><dc:creator>Sieglindec</dc:creator></item><item><title>Anyone taken AA for around 10 years?</title><link>http://www.nos.org.uk/forum/Topic7149-3-1.aspx</link><description>I have been taking Alendronic acid once weekly for nearly 10 years and Didronel PMO for about 2 years prior to that.&lt;br&gt;My question(s) are:&lt;br&gt;&lt;br&gt;1. Has anyone taken these types of meds for this long?&lt;br&gt;&lt;br&gt;If so:&lt;br&gt;&lt;br&gt;2. Assuming it has done the job in raising your BMD, do you think it needs or should be be continued?&lt;br&gt;&lt;br&gt;In addition, for about the last 4 years I have also taken Calcium carbonate 1.5g + Colecalceferol 400IU (AdCAL-D3 or NATECAL-D3).&lt;br&gt;&lt;br&gt;I sort of wonder whether these drugs are doing any good (and maybe harm) once the job is done. It has been recommended that I stay on them as I have a vertebral collapse that I believe may have happened many years ago, though I have no idea how. Also I have epilepsy, the drugs for which tend to reduce vitamin D. These levels are only reasonable and that's probably because of the D3 in the Natecal-D3.&lt;br&gt;&lt;br&gt;It's just I have been having trouble with pain in the sitting bones and to some extent in the sacrum region and this has been going on for about 5 years. This makes sitting uncomfortable, as though the bones have been affected, maybe by these drugs. It really gets me down. I have seen a rheumatologist who got it totally wrong and gave me cortisone injections in the low spine, which of course did nothing. I had physio to try to strengthen the glutes. again to no effect. So I seem to be stuck with it and I can't help thinking about the AA etc and if it is doing harm after all thsi time.&lt;br&gt;&lt;br&gt;BTW I have never broken a bone, I'm male later 50s.&lt;br&gt;&lt;br&gt;Thanks folks.</description><pubDate>Sun, 13 Nov 2011 00:41:34 GMT</pubDate><dc:creator>rob54</dc:creator></item><item><title>Rebounding</title><link>http://www.nos.org.uk/forum/Topic792-3-1.aspx</link><description>I was recently diagnosed as having osteoporosis in my spine. I am very active in my late fifties. Has anyone any experience of using a rebounder (a small round trampolene)? I have read that astronauts use them after coming back from space, to help rebuild bone loss. Has any research been done on their effectiveness?</description><pubDate>Tue, 03 Nov 2009 18:47:43 GMT</pubDate><dc:creator>annebe</dc:creator></item><item><title>Gluten Allergy responsible for OP??</title><link>http://www.nos.org.uk/forum/Topic7912-3-1.aspx</link><description>I have had some Kinesiology this afternoon and have been diagnosed with a Gluten Allergy and Candida which appears to be taking the calcium out of my bones. Has anyone had a similar experience that Gluten can have this effect on the bones?  My PH was very acid even though I have been very carefully eating the right things for the past 6 weeks (it was only at that time that I read about this all on here)&lt;br&gt;There is no OP in my family, in fact my sister is 4 years older than me and was told that she has bones of a 30 year old. &lt;br&gt;Well, at least my fractures seem to be healing, albeit very slowly but the pain is not quite so horrible anymore and I am able to walk a little.</description><pubDate>Wed, 01 Feb 2012 20:09:24 GMT</pubDate><dc:creator>Sieglindec</dc:creator></item><item><title>problems with risedronate sodium</title><link>http://www.nos.org.uk/forum/Topic7838-3-1.aspx</link><description>i have been diagnosed with osteoporosis of the spine and have taken risedronate for the past 6mths but i am now experiencing bone pain in my back and my teeth and gums feel very sensitive.  could it be the medication i'm taking that is causing this?  i previously took fosamax for a while when diagnosed with osteopena due to early menopause (37 i'm now 62)and that affected my whole body it just ached all the time but my jaw was the worst so stopped taking it.&lt;/P&gt;&lt;P&gt;can anyone advise me on what medication has less side effects please.</description><pubDate>Wed, 25 Jan 2012 11:04:47 GMT</pubDate><dc:creator>welshchris</dc:creator></item><item><title>Melatonin for osteoporosis ?</title><link>http://www.nos.org.uk/forum/Topic2256-3-1.aspx</link><description>There's an interesting article in the Daily Mail about research into using Melatonin for osteoporosis: &lt;A href=" http://www.dailymail.co.uk/health/article-1296091/Could-sleeping-pill-help-rebuild-brittle-bones.html" target=_blank&gt;Could a sleeping pill help rebuild your brittle bones?&lt;/A&gt;&lt;br&gt;&lt;br&gt;Melatonin is something produced by the body naturally, but some people, especially when they get older, don't produce enough of it. Melatonin has been used to help with insomnia.&lt;br&gt;&lt;br&gt;I know I don't have a good sleep pattern, I wake several times per night, always have done since I was a teenager...that's how I'm able to take my Strontium Ranelate dose during the night. I've considered asking my GP for Melatonin for my sleep, (but have not done so as there is a suggestion that it is not advisable for people with diabetes) but I'm wondering now if it would have a dual good effect.&lt;br&gt;&lt;br&gt;I see Rob Dawson from the NOS responded in the Mail article - I wonder if that is our Rob with the doggy on the forum ?</description><pubDate>Wed, 21 Jul 2010 09:28:11 GMT</pubDate><dc:creator>AnneB</dc:creator></item><item><title>US Study showing good results for treatment of OP with micronutrients and strontium</title><link>http://www.nos.org.uk/forum/Topic7852-3-1.aspx</link><description>http://www.hindawi.com/journals/jeph/2012/354151/&lt;br&gt;&lt;br&gt;Just got back from holiday and noticed this link on the National Osteo Foundation Inspire forum. I haven't had time to read it all yet, but it does seem to be very interesting.</description><pubDate>Thu, 26 Jan 2012 18:39:55 GMT</pubDate><dc:creator>Lynne H</dc:creator></item><item><title>Hormone Replacement</title><link>http://www.nos.org.uk/forum/Topic7828-3-1.aspx</link><description>I was advised when visiting my dentist recently that hormone replacement therapy (one injection) can improve bone density.  Has anyone taken this option and  what were the results?</description><pubDate>Tue, 24 Jan 2012 20:57:31 GMT</pubDate><dc:creator>ChrisR</dc:creator></item><item><title>NATURAL WAY TO TREAT OSTEOPOROSIS</title><link>http://www.nos.org.uk/forum/Topic6791-3-1.aspx</link><description>My doctor said I had osteoporosis last yr and suggested I take fosamax. I said "NO WAY"&lt;/P&gt;&lt;P&gt;I have read on all the dangerous side effects and I really enjoy having a jawbone in my skull so no drugs!&lt;/P&gt;&lt;P&gt;I have heard from a woman about a web site that the woman who runs it had osteoporosis but she cured herself without drugs. Natural foods that strengthen bones and of course weight bearing exercise.&lt;/P&gt;&lt;P&gt;On the site the nurse who had the osteoporosis suggest we also get a weight walking vest as that is the very best way to strengthen bones. She said to strengthen bone you must MUST do weight bearing exercise so she said the vest is the best way to do that. Her vest is made by women for women its by NYKNYC  Long story short I am feeling like superwoman -a  year later! I cleaned up my diet removed foods and drinks that steal calcium from bones and of course I eat a bone healthy diet with one hour of weight walking in my cute vest each day. I HIGHLY RECOMMEND THIS METHOD TO ALL WOMEN.&lt;/P&gt;&lt;P&gt;Forget the drugs they will cause damage that you will wish you had never used those drugs once you take fosamax boniva etc etc you do damage to your bones - women have lost their jaw bones and I know one lady who had to get extensive plastic surgery to re build her jaw after she took fosamax so go natural way to strengthen bones . see reverseosteopenia .com and see vest at nyknyc.com:D</description><pubDate>Thu, 06 Oct 2011 23:49:57 GMT</pubDate><dc:creator>extermanatusa</dc:creator></item><item><title>Ibnadronate</title><link>http://www.nos.org.uk/forum/Topic7834-3-1.aspx</link><description>anyone take this monthly tablet, and get side effect, up to 3 weeks later, or, is it me just having an "off day"::)</description><pubDate>Wed, 25 Jan 2012 08:58:09 GMT</pubDate><dc:creator>jillybee</dc:creator></item><item><title>kyphoplasty</title><link>http://www.nos.org.uk/forum/Topic2205-3-1.aspx</link><description>Hi, has anyone had kyphoplasty.  I'd be very interested to  know how you found it.  Did it get rid of the pain from your wedge fractures? I am seriously thinking of paying for private surgery as I have been in pain for 6 months from 3 fractures and can't bear it much longer.  Also my quality of life has been seriously compromised.  I am 65 yrs old.</description><pubDate>Sat, 10 Jul 2010 18:30:49 GMT</pubDate><dc:creator>cymraes</dc:creator></item><item><title>Vitamin  K- MK- 7 and MK- 4</title><link>http://www.nos.org.uk/forum/Topic7777-3-1.aspx</link><description>Again, I'm confused about Vitamin K. Below are two posts on the Inspire forum. &lt;br&gt;&lt;br&gt;1 “Last week, I experienced numbness in my left hand and arm up to my elbow. A few minutes later my jaw and gums became numb and then the left side of my tongue. It was so scary that I called the dr's office and was advised to go to the ER. I did and, after many tests, was diagnosed as having a mini-stroke. I spent the night in the hospital for observation. The numbness went away after about 2 hours and I have no aftereffects. When the hospitalist asked about all my meds I mentioned the Vit.K. He looked like he could not believe what I had just told him and advised me that K is given as an antedote for blood thinners because it makes the blood thicken. The neurologist reacted the same way when I told him. So did my family dr. when I saw her today.&lt;br&gt;&lt;br&gt;2 “I totally agree with you, in everything you've said here and in other discussions. Mk-4 is better for bones and is much safer. It is unfortunate that Mk-4 and Mk-7 are often being represented interchangeably, in literature and in marketing. We need to beware that the Mk-7 form of Vit. K2 has a 3.5 day half-life in the blood stream and can build up to dangerous levels. You most likely already know, but I will give the link to wgr's graph, which shows how 100 mcg daily builds over time:”&lt;br&gt;http://img33.imageshack.us/img33/6604/100mcgdaily.jpg After 14 days, the amount reaches an asymptote of over 500 mcg.”&lt;br&gt;&lt;br&gt;What dose do you consider to be a safe and helpful dose of Vitamin K. Also, has anyone tried Natto?&lt;br&gt;</description><pubDate>Fri, 20 Jan 2012 09:00:55 GMT</pubDate><dc:creator>Diana 100</dc:creator></item><item><title>Anyone takes Aspirin?</title><link>http://www.nos.org.uk/forum/Topic7799-3-1.aspx</link><description>hi I'm new here. had DEXA scan confirmed that I got Osteoporosis last May, taking HRT since. And as I got bad breastbone pain after taking one AA, currently looking for alternatives, considering SR but not sure. One of side effects blood clots, same as taking HRT, wondering if taking Aspirin could prevent it?&lt;br&gt;The reason I took HRT because I had very bad symptom of menopause, starting 5 years ago, I am 52 now, still had hot flush etc before taking HRT. The doctor I am seeing now told me that only HRT is not good enough to reverse the bone density, need to also take AA or others.&lt;br&gt;Would really appreciate any advise. Thanks.&lt;br&gt;T- score -3.4 L2 - L4 BMD = 0.791 gm cm sq&lt;br&gt;T-score -1.5 hip BMD = 0.822 gm cm sq &lt;br&gt;Would like to have another scan, but doctor wouldn't agree.</description><pubDate>Sat, 21 Jan 2012 19:25:20 GMT</pubDate><dc:creator>Yan</dc:creator></item><item><title>I do not want to take any Osteoporosis drugs.  Are there alternatives?</title><link>http://www.nos.org.uk/forum/Topic3562-3-1.aspx</link><description>Thanks to all the posters on this site for the last month I have reading books/documents about medication for OP.&lt;br&gt;&lt;br&gt;From what I have read it seems that the side effects of bisphophsonates its not worth even thinking about taking Alendronate/Fosamax as it stops osteoclasts from working (they break down old bone) and inhibits osteoblasts (tha make new bone) from working.  So although your bone density may increase, its just increased with 'dead bone' and this type of bone can be brittle. Also MERCK who market this drug benefit by 3.2 billion from its sale, so do not advertise all the side effects.&lt;br&gt;&lt;br&gt;Strontium is beneficial BUT as strontium is an element it cannot be patented so is patented as Strontium Ranelate (can cause blood clots) or Strontium citrate which appears to be easily absorbed but is not available in the UK.&lt;br&gt;&lt;br&gt;Is it possible to prevent further bone loss by Vit D and clacium AND diet and exercise?&lt;br&gt;&lt;br&gt;Has anyone done this?&lt;br&gt;&lt;br&gt;Sarah</description><pubDate>Wed, 26 Jan 2011 13:57:38 GMT</pubDate><dc:creator>Sarah W</dc:creator></item><item><title>Forsteo Treatment</title><link>http://www.nos.org.uk/forum/Topic7770-3-1.aspx</link><description>Have just started on an 18 month course of Forsteo injections which I have to do daily.  Hoping this is going to make an improvement after having suffered 4 spinal fractures and lost 4 inches in height.  I first developed osteoporosis 5 years ago and was started on Alendronic Acid tablets but they gave me heartburn and then I was put on Actonel tablets.  When I went for my scan last October my bone density had gone away down so much that the doctor decided the tablets were not working as well as they should have been.  I have had three months with no medication and started my injections last week so fingers crossed this will work for me.</description><pubDate>Thu, 19 Jan 2012 10:34:59 GMT</pubDate><dc:creator>Jenny63</dc:creator></item><item><title>HRT</title><link>http://www.nos.org.uk/forum/Topic7743-3-1.aspx</link><description>Dear All&lt;br&gt;Early menopause (43) and OP (diagnosed at 47): would you take HRT?  I read a report about it written by the VP of the OP Society...look forward to your views.&lt;br&gt;Libby&lt;br&gt;:)</description><pubDate>Mon, 16 Jan 2012 20:37:26 GMT</pubDate><dc:creator>Libby</dc:creator></item><item><title>Treatment for vertebral fractures – we want your views</title><link>http://www.nos.org.uk/forum/Topic7643-3-1.aspx</link><description>National Institute for Health and Clinical Excellence (NICE) are appraising two procedures for treating osteoporotic vertebral fractures. As part of the process the National Osteoporosis Society are able to submit a statement representing your views on vertebral fracture, percutaneous vertebroplasty and percutaneous balloon kyphoplasty.&lt;P&gt;Have you or someone you care for had a vertebral fracture, what was the experience like, what care did you receive? &lt;/P&gt;&lt;P&gt;Visit &lt;A href="http://www.surveymonkey.com/s/VertebralFracture"&gt;http://www.surveymonkey.com/s/VertebralFracture&lt;/A&gt; to find our more information and tell us your experience. Please can you complete the survey by 29 January.&lt;/P&gt;&lt;P&gt;Any discussion in this thread will also be used (anonymously) to help form our statment so feel free to chat here as well as responding to the survey.&lt;/P&gt;&lt;P&gt;Thank you for your time.</description><pubDate>Mon, 09 Jan 2012 16:16:53 GMT</pubDate><dc:creator>Claire Bowring</dc:creator></item><item><title>Chiropractic treatments</title><link>http://www.nos.org.uk/forum/Topic7708-3-1.aspx</link><description>Are there any safe treatments which a Chiropractor can do with someone with osteoporosis . I now that some chiropractors use the proadjustor which is supposed to be more gentle. But how effective is  it. Any ideas??</description><pubDate>Sat, 14 Jan 2012 04:25:22 GMT</pubDate><dc:creator>asr</dc:creator></item><item><title>The Food Hospital C4</title><link>http://www.nos.org.uk/forum/Topic7112-3-1.aspx</link><description>Has anyone seen this programme?  Cos if you have not and are wanting to help yourself by altering the food you eat - this programme is a real eyeopener.&lt;br&gt;&lt;br&gt;If only the OP clinics , and the NOS, would put as much effort into advising on what foods to eat, and what foods to avoid, I do think that alot of people could prevent OP and if you have OP learn how to minimise bone loss by diet.&lt;br&gt;&lt;br&gt;I hope the NOS contact the doctors at the Food Hospital and ask for trials for diets with people with OP - I'd sign up.&lt;br&gt;&lt;br&gt;Sarah</description><pubDate>Wed, 09 Nov 2011 16:31:27 GMT</pubDate><dc:creator>Sarah W</dc:creator></item><item><title>Has anyone tried Kinesiology</title><link>http://www.nos.org.uk/forum/Topic7621-3-1.aspx</link><description>Hi &lt;br&gt;I am new here but have introduced myself yesterday. As I am in bed at the moment with yet another 3 broken vertebra's (outch), I have spent a bit of time researching various helpful ideas and just wondered if anyone has tried Kinesiology to find out what our body needs/ is lacking? I had been on Fossamax for 1 year, but got pretty ill with it and stopped it again (thank god). There is a very helpful post here on this Forum about alcaline/acid diet which so makes a lot of sense. My PH levels 6 months ago were well below the recommended 7.35 - 7.45 and I think this together with an underactive Thyroid (which also was only diagnosed 6 months ago) has taken more calcium out off my bones. I had been diagnosed with Osteoporosis some 6 years ago when I fractured my spine for the first time and I am normally a very fit and active person enjoying sports etc, but feel really stuck just now.</description><pubDate>Fri, 06 Jan 2012 17:28:28 GMT</pubDate><dc:creator>Sieglindec</dc:creator></item><item><title>Osteoporosis article in Daily Mail</title><link>http://www.nos.org.uk/forum/Topic6935-3-1.aspx</link><description>There's an article on osteoporosis in today's Mail with interviews with Camilla, Duchess of Cornwall, and with various people with osteoporsis: &lt;A href="http://www.dailymail.co.uk/health/article-2053093/Fatal-toll-fragile-bones-Osteoporosis-kills-1-100-month--causes-millions-needless-agony.html" target=_blank&gt;www.dailymail.co.uk/health/article-2053093/Fatal-toll-fragile-bones-Osteoporosis-kills-1-100-month--causes-millions-needless-agony.html&lt;/A&gt;&lt;br&gt;&lt;br&gt;For [b]Sarah W[/b] - they quote a doctor from Oxford who is an "expert" in metabolic bone disorders, a Dr Kassim Javaid, was that one you saw ?</description><pubDate>Tue, 25 Oct 2011 11:04:03 GMT</pubDate><dc:creator>AnneB</dc:creator></item><item><title>Vitamin D</title><link>http://www.nos.org.uk/forum/Topic7678-3-1.aspx</link><description>Holland and Barrett do a vitamin D capsule 25microgram (1000 IU) as vitamin D3 to be taken once a day (so the same as in Adcal-D3 though that is only 400IU but to be taken twice a day).&lt;br&gt;&lt;br&gt;Do we need the extra Calcium that Adcal gives us if we have a normal diet. I am particularly keep to make sure vit D levels are kept up (if I stop Adcal-D3) as I take anti-epileptic meds. Does anyone take the Holland and Barrett preparation. Also my wife has osteopenia and was prescribed Calcichew-D3 but it causes her constipation. She probably needs it but if she can get some D3 from these capsules there won't be the same problem.</description><pubDate>Thu, 12 Jan 2012 01:24:13 GMT</pubDate><dc:creator>rob54</dc:creator></item><item><title>What next after my 4th bisphosphonate?</title><link>http://www.nos.org.uk/forum/Topic5538-3-1.aspx</link><description>Despite my 20 year history of Irritable Bowel Syndrome I am now on my 4th bisphonate in the 18 months since diagnosis.  My  hip score is -2.6 &amp;amp; spine -3.6.  I've taken Fosamax, Actonel &amp;amp; one I can't remember that made me very ill so I was taken off it after one dose.  I now have an acid reflux problem which I did not have before, so basically my entire digestive system is wrecked at present.  I have been on Omeprazole (to treat the acid reflux) for the past 6 weeks, but it's still not better.  I started taking Bonviva two weeks ago after  a 5 week rest from bisphosphonates, but my IBS is worse again, so but it's not looking good.&lt;/P&gt;&lt;P&gt;I presume that any alternative treatments e.g Strontium Ranelate must be v expensive to put me through all this.  I am seeing my GP on Monday.  Is there anyone out there with IBS?  Or knows which treatment is less likely to upset the digestion?  I appreciate people's responses to drugs vary (&amp;amp; I do realise I am lucky that there are treatments available nowadays). </description><pubDate>Fri, 24 Jun 2011 13:34:46 GMT</pubDate><dc:creator>maria10</dc:creator></item><item><title>Alendronate (Fosamax)</title><link>http://www.nos.org.uk/forum/Topic7674-3-1.aspx</link><description>Hi Everyone,&lt;br&gt;&lt;br&gt;I have been prescribed the above. I have searched the web been on many forums and all I read is pretty awful case histories for people taking the above. Does anyone have any positive comments about Fosamax?</description><pubDate>Wed, 11 Jan 2012 15:59:46 GMT</pubDate><dc:creator>Ruimon</dc:creator></item><item><title>Evista</title><link>http://www.nos.org.uk/forum/Topic7452-3-1.aspx</link><description>Hi&lt;/P&gt;&lt;P&gt;A friend of mine has been on Evista for 16 years (mainly due to arthritis) but also to help her bone density.  Her recent DXA showed a reversal and she is now off the list for OP.  &lt;/P&gt;&lt;P&gt;Would any of you out there have views on Evista (Raloxifene) - as a an OP sufferer at 48 I am keen to at least try something.&lt;/P&gt;&lt;P&gt;Thanks&lt;/P&gt;&lt;P&gt;Libby</description><pubDate>Sun, 11 Dec 2011 15:47:22 GMT</pubDate><dc:creator>Libby</dc:creator></item><item><title>Bonviva and eye pain...not to mention the muscle/joint pain....</title><link>http://www.nos.org.uk/forum/Topic7501-3-1.aspx</link><description>Hello again,&lt;/P&gt;&lt;P&gt;i have been put on monthly oral  Bonviva(since July 2011) after developing oesophagitis when taking Alendronic acid(took this for 5 months before having to give it up).&lt;/P&gt;&lt;P&gt;Since taking Bonviva, I have developed awful eye pain (both eyes) which I am wondering is related to the bonviva. Has anyone else had this problem?&lt;/P&gt;&lt;P&gt;The latest dose of bonviva I took was on 4 December, and within days of this had the worst episode of eye pain which resulted in me having to take day off work. No redness, no discharge, just a deep, unpleasant ache to both eyes. Horrible. I also have muscle/joint pains and have started to get that awful feeling back in my throat again. Gp dismisses my concerns and tells me to keep taking it and take painkillers!&lt;/P&gt;&lt;P&gt;I saw optician who can't find anything wrong and confirms there has been no change in my prescription (reading glasses only).&lt;/P&gt;&lt;P&gt;Thanks for any suggestions or advice.</description><pubDate>Wed, 14 Dec 2011 19:57:08 GMT</pubDate><dc:creator>Happyshopper</dc:creator></item><item><title>Prolia injection due</title><link>http://www.nos.org.uk/forum/Topic6182-3-1.aspx</link><description>I am due for my second prolia injection soon and have decided to have it done as the only side effect was an instant pain in the groin when I had the last one done and this seems to have improved in the last month.I am very scared still about it though, has anyone else had the 2nd injection yet?</description><pubDate>Wed, 03 Aug 2011 09:45:40 GMT</pubDate><dc:creator>Elizabeth Sal</dc:creator></item><item><title>Alkaline loaded diet</title><link>http://www.nos.org.uk/forum/Topic7426-3-1.aspx</link><description>Hi&lt;/P&gt;&lt;P&gt;Please could someone tell me what an alkaline loaded diet consists of? I am anxious to change my eating habits but don't know where to start. I don't and won't eat red meat but am prepared to try anything else which may help my poor bones. </description><pubDate>Wed, 07 Dec 2011 23:03:21 GMT</pubDate><dc:creator>lynneh</dc:creator></item><item><title>Article:  Strontium and new bone formation in cancer patient</title><link>http://www.nos.org.uk/forum/Topic7574-3-1.aspx</link><description>http://tahomaclinicblog.com/strontium/#art&lt;br&gt;&lt;br&gt;This article is interesting if you can get the link to work. I found it posted on the National Osteo. Foundation forum.&lt;br&gt;&lt;br&gt;HAPPY NEW YEAR TO ALL FORUM MEMBERS</description><pubDate>Mon, 02 Jan 2012 15:56:14 GMT</pubDate><dc:creator>Lynne H</dc:creator></item><item><title>Sitting down 6 hrs a day-is this Ok for OP spine?</title><link>http://www.nos.org.uk/forum/Topic7412-3-1.aspx</link><description>Hi all,&lt;/P&gt;&lt;P&gt;I was dx with OP of lumbar spine in 2010 (T score -3.1). I was taking AA, had to stop due to oesophagitis, now on monthly ibrandronic acid (Bonviva). My job involves sitting for 6 hrs a day at adesk. I do get up as often as poss, but was wondering what the long term effect of this on my osteoporitic spine? Surely sitting will cause compression to the spine, which would be detrimental over a period of time?&lt;/P&gt;&lt;P&gt;I would be grateful for any comments on this, as fairly new to all this and learning all the time! </description><pubDate>Mon, 05 Dec 2011 19:07:28 GMT</pubDate><dc:creator>Happyshopper</dc:creator></item><item><title>chiropractor and osteoporosis</title><link>http://www.nos.org.uk/forum/Topic7495-3-1.aspx</link><description>Has anyone any info re the effectiveness/safety of these folk ?&lt;br&gt;I have osteoporosis quite badly in spine and hip, several T fractures now 'healed' and a compression.&lt;br&gt;I had an assessment by a chiropractor, they took some rays, when I returned to see them they said they would not do anything for the T area, however the pictures of my neck show the cervical vertebrae and my head are moving forward so if it continues I could end up bent right over I am 58 and was 56 when diagnosed, the lumber spine ray showed why I now get pins and needles, as my spine is bent sideways, the front to back movement is o k they said the C curve was fine. If this is left the disc could slip out and the nerve seriously damaged. My medical practice is not interested in the pins and needles. &lt;br&gt;Do we know if it is safe to go to a chiropractor for help in these spinal areas that are either side of my T problems, as they won't be working on them as such?&lt;br&gt;Would appreciate ideas and comments,&lt;br&gt;Thank you&lt;br&gt;Carapace.</description><pubDate>Wed, 14 Dec 2011 13:45:17 GMT</pubDate><dc:creator>Carapace</dc:creator></item><item><title>Walk a bit, sit a bit then lie down a bit</title><link>http://www.nos.org.uk/forum/Topic7173-3-1.aspx</link><description>[font=Arial Black][size=2]Does anyone have similar problems as me?  I can walk for a short period (also suffer ms), then have to sit down as my back hurts, right through to my front.  Then after sitting for a while, trying to get comfortable, I have to shift position and mostly end up lying down to relieve my spine (2 recent fractures).  All this is limiting my daily life.&lt;br&gt;&lt;br&gt;Ive met others with OP and most seem quite able to carry on their activities during the day without much hindrance.  Am I different or are there others out there in pain like me?&lt;br&gt;&lt;br&gt;bren[/size][/font]</description><pubDate>Tue, 15 Nov 2011 18:12:24 GMT</pubDate><dc:creator>yawn</dc:creator></item><item><title>Finding a Specialist</title><link>http://www.nos.org.uk/forum/Topic7468-3-1.aspx</link><description>I live inStuart Florida and I'm searching for a specialist in osteoporosis. I don't want to just go to my regulate doctor who just orders the Rx.&lt;br&gt;&lt;br&gt;I want a specialized doctor or an alternative.&lt;br&gt;&lt;br&gt;Thank you,</description><pubDate>Tue, 13 Dec 2011 01:26:55 GMT</pubDate><dc:creator>Darthi</dc:creator></item><item><title>a message to reassure</title><link>http://www.nos.org.uk/forum/Topic7276-3-1.aspx</link><description>Hi, I'm newly diagnosed with osteoporosis, although I've had osteopenia for around 10 years. I've never ever participated in any forums before and the only reason I'm doing so now is because I have been reading through some of the existing posts and have been thoroughly depressed by so many of them. &lt;/P&gt;&lt;P&gt;So I'd like to add my bit, which is to point out that most of us tend to respond more energetically when things are going wrong, or when we are in pain or worried. I think it should be remembered that people who are coping well are probably under-represented in any discussion area like this. &lt;/P&gt;&lt;P&gt;About 4 months ago I was prescribed Alendronic Acid, in addition to the Calcium and Vitamin D supplement I have been taking for 10 years. I have taken it as instructed once a week, and can honestly say that &lt;U&gt;I have not yet noticed a single bad side effect&lt;/U&gt;. This is slightly surprising in a way as I do have some food intolerances and I therefore did wonder if the AA would upset me. However, I have had no trouble at all, and think I cannot be the only person who is okay with it.&lt;/P&gt;&lt;P&gt;It's bad enough coming to terms with the fact that your bones are crumbling away in your body, without having to dread taking the medications which might help to prevent the deterioration. I am in no way minimising the troublesome reactions that other people have had, but I do want to remind other newly diagnosed and nervous people that the proportion of people suffering side effects, as listed in the medication leaflet, is actually far smaller than the proportion who are reporting adverse reactions on this forum - presumably the contented people just don't contribute, as they don't (luckily for them) have the same motivation to find support. &lt;/P&gt;&lt;P&gt;I really hope that all those who ARE suffering problems are able to find alternative successful medication, and I wish everybody who is cursed with osteoporosis to any degree as happy and painfree an existence as possible.</description><pubDate>Wed, 23 Nov 2011 21:30:38 GMT</pubDate><dc:creator>Muffbones</dc:creator></item><item><title>Dexa scans whilst taking Sodium Ranalate</title><link>http://www.nos.org.uk/forum/Topic7236-3-1.aspx</link><description>I understood from my consultant that it is pointless having dexa scans when taking sodium ranelate. The SR coats the outside of the bones and gives false readings.  Is it really the case that the only way you can tell the SR is working is that bones are not breaking?  The consultant also mentioned that it is now thought that three years is long enough to be on medication for Osteoporosis.  Has anyone any information on this please?</description><pubDate>Mon, 21 Nov 2011 22:35:37 GMT</pubDate><dc:creator>Hannah</dc:creator></item><item><title>Pinned hip @ 49, Forsteo + other big meds?</title><link>http://www.nos.org.uk/forum/Topic7278-3-1.aspx</link><description>Hello!  I'm somewhat concerned by the mixed press of Forsteo and trying to get my head around a great deal of new info.  Up till now, my main meds (for rare myositis which limits my exercise): prednisolone (steroid) &amp; immune suppressants (azathioprine) and Alendronic Acid &amp; Calcichew. Having just broken my hip in an 'ordinary' fall and being 'young', I have been prescribed Forsteo. Concerned now though re risks, especially reading US coverage. I'm used to powerful meds as I am proof of their benefits! But if bones renew themselves. . .???  And my T score was ostopeanic/osteoporotic?  Is there another way?</description><pubDate>Wed, 23 Nov 2011 21:44:27 GMT</pubDate><dc:creator>Helen_J_P</dc:creator></item><item><title>New to Alendronic acid</title><link>http://www.nos.org.uk/forum/Topic7221-3-1.aspx</link><description>I have been taking alendronic acid for 3 months. I have a definite new 'tenderness' in the lower back and random sharp pains in both my little fingers. Does anyone know if these could be connected to the treatment? Like many of you it seems, I also have bloating and gale force wind!</description><pubDate>Sun, 20 Nov 2011 22:29:06 GMT</pubDate><dc:creator>midge</dc:creator></item></channel></rss>
