InstantForum.NET v4.1.4National Osteoporosis Society - Osteoporosis Forumhttp://www.nos.org.uk/forum/D.Hughes@nos.org.ukWed, 08 Feb 2012 00:57:58 GMT20http://www.nos.org.uk/forum/Topic3444-18-1.aspxDoes anybody else have a child with Idiopathic Juvenille Osteoporosis.<br>Surely there must be somebody out there that has a child in the same situation.<br>I have posted 3 times on the forum now- and lots of people have read my discussions but not one person has replied--surely there must be some support available from others in the same situation.Fri, 21 Jan 2011 20:18:13 GMTcazhttp://www.nos.org.uk/forum/Topic966-18-1.aspxI have a 9 year old daughter who was diagnosed with IJO 3 years ago. I have spoken to several parents who all mention the same thing that there is a lack of physiotherapists who know how to deal with children with IJO as they are unsure whatbtreatment to give them. Can anyone helpWed, 02 Dec 2009 21:08:10 GMTcazhttp://www.nos.org.uk/forum/Topic2960-18-1.aspxMy daughter is 10 years old with IJO and on IV Zoledronate-in the past 3 weeks she has been totally reliant on her crutches and has collapsed once--We have seen a physio today who has said she has severe muscle loss on her legs but doesnt know why as she has had no trauma to her legs--Has anyone experienced anything similar, is it related to her osteoporosis--any advice would be a comfort at this worrying time.Tue, 16 Nov 2010 13:24:13 GMTcazhttp://www.nos.org.uk/forum/Topic2624-18-1.aspxMy daughter aged now 10 has juvenile idiopathic osteoporosis and was treated with pamidronate for 3 years then in january this year changed to zoledronate.</P><P>Since changing to zoledronate she has experienced more pain in the lumbar area of her spine and has also put on weight -(only around her abdomen)-she hardly put on any weight in the 3 years she was on pamidronate.Her abdomen an also be quite distended at times.</P><P>Has anyone else experience this or is it just coincidence.Tue, 14 Sep 2010 22:04:32 GMTcaz