InstantForum.NET v4.1.4National Osteoporosis Society - Osteoporosis Forumhttp://www.nos.org.uk/forum/D.Hughes@nos.org.ukSat, 25 May 2013 22:40:51 GMT20http://www.nos.org.uk/forum/Topic8263-11-1.aspxi think this is the drug that i have been recommended. but i have refused as osteonecrosis of the jaw(onj) can be a side effect (basically that is rotting of the jaw bone) if you have invasive dental surgery. and as i am on anti epileptic drugs (aed's) and one of the side effects of aed's is weakened gums leading to tooth loss i do not want to risk onj. <br>sarahwSat, 16 Jun 2012 18:17:02 GMTSarah Whttp://www.nos.org.uk/forum/Topic8263-11-1.aspxMy GP is very keen for me to have Denusomab - he has no other patients on it and I think he wants to "see what it will do". My concerns are about the side effects. I have osteoarthritis which causes joint pain, particularly in my knees, hips and ankles, and I certainly don't want to make this any worse.I struggle with Adcal - I have bad reflux and this causes indigestion as well. Do I need to continue with the Adcal if I have the Denusomab? I read on an American website that the side effects can also make reflux much worse. I would be grateful for any user's experiences of this drug, so that I can make an informed choice about this.Sat, 16 Jun 2012 10:54:47 GMTjeanmjemhttp://www.nos.org.uk/forum/Topic8263-11-1.aspxHi Davyroy, I also have just been perscibed Denosumab. I'm to have the injection at the end of this month. I will be interested to see how I fair on this drug. I was taking Alendronic Acid for the last twelve months, but it made me quite ill. I'm told Denosumab can cause symptoms such as cellulitis and a condition called osteonecrosis of the jaw. I do find that most alternative drugs all appear to have side effects, and the trick is to find one that suits your body. Hope all goes well for you. regards, Telann.Thu, 03 May 2012 17:07:27 GMTTelannhttp://www.nos.org.uk/forum/Topic8263-11-1.aspxI have just had my third denosumab prolia injection without any side effects, the first one i had groin pain for a few months after it but luckily havent suffered any since. I do get indigestion but I think that is more to do with the adcal calcium vit D. I too suffered horrible side effects with the other drugs (aldronic acid etc) so this injection twice a year fits into my lifestyle very well and I will continue as long as I don't suffer any serious side effects. Reading the list of these in the packet is scarey but I think they have to cover everything, I needed something and every drug causes some form or other I'm sure and at the moment denosumab is suiting me. I will be interested in my bone density scan in 2014 though to see what improvements there hopefully is.Sun, 11 Mar 2012 09:19:35 GMTElizabeth Salhttp://www.nos.org.uk/forum/Topic8263-11-1.aspxHow about having a look at the patient information sheet that comes with this drug and can be found on line.Sat, 10 Mar 2012 00:44:55 GMTAprilhttp://www.nos.org.uk/forum/Topic8263-11-1.aspxI have Osteoporosis with a t score of -3.7. I did take Bisphosponates for 5 years and that gave me Gastritis. I have been asked to have Denosumab now. I am wondering if any one has taken this and would like to share their experiences with me?Tue, 06 Mar 2012 11:11:16 GMTdavyroy